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22% of people diagnosed with cancer in Spain have a rare tumour, according to data from the Spanish Orphan and Infrequent Tumours Group (GETHI). In these cases, as with other rare diseases, the main problems are delayed diagnosis, reduced availability of therapeutic options and, above all, the difficulty of finding professionals who are experts in a disease that only affects a small part of the population.

Up to 95% of tumours are not hereditary

According to estimates by the Spanish Cancer Registers Network (REDECAN), at the end of 2019 more than 275,000 cases of cancer were diagnosed in our country

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